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Although I’m still not myself (but, really, who would want to be me anyway?), I have been feeling significantly better over this past month. I know a part of it is the distraction of the move, but I actually have more energy and am not feeling the desperate need to sleep the entire day. So, feeling cocky, I decided to check my lab results online last night. Shit! The one important number that started in the 7 thousands and dropped to the 3 thousands last month is now up to the 4 thousands this month (exactly what it did last time there had been improvement). It’s supposed to be around 120. So, I crashed a bit last night, but I’m plowing on this morning. I see the nephrologist Tuesday afternoon.
When I look in the mirror, I see someone who has aged 5 years in a few short months. When I’m out and about, I’m told how great I look, even by people who don’t know about my illness. I’ll take their word for it.
The cats wanted their noon treats at 10 this morning. I ignored them and went about my business. It’s now past 11:30 and they’re both sound asleep. It shows how hungry they really were.
I’ve almost finished the floor plan of the new apartment. Not my best work, but it will do. All I have left is to measure the furniture in San Geraldo’s office, scale it, and then cut it all out. I hope to share it in a day or so.
We’re going to Elena and Tynan’s for lunch today and we’re meeting Lulu for dinner tonight. A happy day.
Aunque todavía no soy yo misma (pero, en serio, ¿quién querría ser yo de todos modos?), me he estado sintiendo mucho mejor durante este último mes. Sé que en parte se debe a la distracción de la mudanza, pero en realidad tengo más energía y no siento la necesidad desesperada de dormir todo el día. Así que, sintiéndome arrogante, decidí consultar mis resultados de laboratorio en línea anoche. ¡Mierda! El único número importante que comenzó en los 7 mil y bajó a los 3 mil el mes pasado ahora ha subido a los 4 mil este mes (exactamente lo que hizo la última vez que hubo una mejora). Se supone que debe estar alrededor de 120. Así que anoche me desplomé un poco, pero esta mañana seguiré adelante. Veo al nefrólogo el martes por la tarde.
Cuando me miro al espejo, veo a alguien que ha envejecido 5 años en unos pocos meses. Cuando estoy fuera de casa, me dicen lo bien que me veo, incluso personas que no saben sobre mi enfermedad. Les creo.
Los gatos querían sus golosinas del mediodía a las 10 de la mañana. Los ignoré y me dediqué a mis asuntos. Ya son después de las 11:30 y ambos están profundamente dormidos. Eso demuestra lo hambrientos que estaban.
Casi he terminado el plano del nuevo apartamento. No es mi mejor trabajo, pero servirá. Todo lo que me queda es medir los muebles de la oficina de San Geraldo, escalarlos y luego cortarlos. Espero poder compartirlos en uno o dos días.
Hoy vamos a ir a almorzar a casa de Elena y Tynan y esta noche nos reuniremos con Lulu para cenar. Un día feliz.
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Love the light in the photo. Always remember you are not a number, or a diagnosis. You feel how you feel. Being distracted from the physical, can help the body heal.
David:
It’s not easy because I wonder what damage is being done by the lack of proper kidney function. But I’ll be reassured by the doctor tomorrow. Maybe the meds will be increased. And I DO have more energy.
I hope you feel better.
Adam:
Thanks. I clearly feel better. Just waiting for the numbers to catch up!
I utterly second what Travel said up top.
I, too, have people tell me I look good and far younger than my true age and then I look in a mirror and wonder who they saw!!
Bob:
Yep. I think “Are you talkin’ to me?”
The cats are fast asleep because they’re too weak from hunger to do anything else, the poor babies.
Debra:
That’s exactly what SG thinks! It’s now 10:47 and they’re demanding their noon treats.
Boud here sharing your disappointment over the test results, but since you’re feeling better anyway, that must count. Enjoy your day.
Boud:
I worry about permanant damage being done but there’s nothing I can do about it, so I suppose I should just be grateful I’ve got more energy.
Persevere, big guy, you’re worth it! 😘
wickedhamster:
Thanks. I’m persevering — when I’m not perseverating.
Numbers change all the time depending on what is going on around you. Stay positive and keep busy.
Jim:
Keeping busy makes so much difference.
Try not to over-worry. The nephrologist will help you figure things out. The fact that you have more energy is a very good sign, I think.
Now- BE WELL! I command it.
Moonsigh
Ms. Moonsigh:
Yes, at least I have more energy. I will obey.
Tsk, tsk. Wasn’t it Deedles who chided you for going online and checking your results before you’ve spoken to the specialist? Now you sent yourself off down the “worry spiral” again…
Concentrate on the move, and the renewed energy you feel, dear. Jx
Jon:
Yeah, I thought I was feeling so much better that, obviously, the lab results would be great. What a jerk!
I’m excited to see your plans shared with us, for the new home! It’s great that you are feeling good, and the nephrologist will continue working your toward being even healthier. Meeting up with friends will be wonderful!
Judy:
Nice time with friends yesterday. Today I’ll finish the floor plans and continue thinning out my “stuff.”
A little bit of knowledge can be dangerous. You probably shouldn’t look at results until right before you head to your appointment where they can be explained.
It’s amazing how feeling bad, even if it’s just minor pain or discomfort, can wear you out if it’s chronic. I feel like I’ve aged 20 years over the past 5. Staying busy and focusing on other things helps me and it sounds like it helps you, too. Let yourself get into the excitement of the move! I’m looking forward to seeing that floor plan!
Kelly:
I probably shouldn’t look at results at all. Ignorance can be bliss.
Please refrain from checking test results on-line, Scoot! Such data should be discussed with your specialist who has the training, education and experience to interpret and put them in the proper context for you. Otherwise, you’re just creating unnecessary worry and stress for yourself! Dudo & Moose’s example is a good one: nap whenever you feel like it and regularly pester SG for treats, LOL!
Tundra Bunny:
I know. I know. Will I ever learn? I just knew the results would be great given how I’m feeling. I will NOT do this again. I don’t even have to pester SG. He just came in and asked if I wanted cookies.
I am not a big fan anymore of checking labs on line anymore.
I am not fond of the mirror either.
Urspo:
I have never been a big fan of checking labs online. I never learn!
It is hard to stay positive when your health doesn’t cooperate. Please stay optimistic and focus on taking care of you and don’t let a slight downturn discourage you. You have so much love and support coming at you, and we all want you to stay healthy and strong for a long time to gone!!!
Sassybear:
Gotcha. New attitude (yet again) today.
I am glad you feel better, and that counts a lot. Lots of good comments above. Olivia
Olivia:
I should just focus on how I feel and not worry about the rest.
I second what everyone else is saying here. Focus on how you feel, not what the numbers say.
Kirk:
You’re all right. I can do nothing about the numbers.
I’ve been busy with my own move so I’ve missed some of your blogs. Sorry to hear you’ve been ill. That’s no fun when you’re moving. Sounds like you found an apartment? I hope your move goes well.
tobyo:
Hope your move is going smoothly. Despite my stupid lab work, I’m doing well and very excited about our move.
Thanks! Leaving the end of the month, arriving 11/2. Glad to hear your good news 🤗
tobyo:
You must be so excited!
I am!!
Mitchell, I am sorry to read about your numbers. I hope that you will get encouraging news at the nephrologist. The numbers game when there’s not something right is a scary place to be. I am always so worked up when I get ready to look at my latest PSA results. Take care.
Michael:
I remember when you had your numbers worries. Mine is nothing like that and I need to stop going online.
I would go online too when I was going through my illness and it never was a good thing as I’d start to feel panic-y.
Michael:
I remember that. You’d think I might have learned something.
It’s hard to not look.
You don’t need to worry about those numbers because now that I know, I’m taking over the worrying. I’m happy that you feel better.
Love,
Janie